Toddler with multiple food allergies(Long)

[Precious]

I'm sorry this is long.  I'm so glad to find this place.  My DD 2 and will turn 3 in a month.   She has been fluctuating between 27-28 lbs.   She has slow weight gain, allergic shiners, multiple food allergies, complains of stomach aches sometimes.   She just had another SPT and lost pork, beef, bananas, apples.  On top of that she avoids coconut, nuts, tree nuts, chicken, fish(except cod), strawberries, gluten.    Corn and dairy are trialing right now.   Will try soy and other legumes later.

She used to be such a big baby and healthy looking.  Now she looks scrawny and she bruises a lot. She's been tested for bleeding disorders, all negative.   She's had a lot of GI tests as well and her thyroid, all normal.  

Last year she didn't gain weight until July when we took gluten off her diet.  So DH and I were so happy and thinking she has celiac(like me) and it was the answer to our problems.  I know this sounds odd but at least we could manage it with diet.  Being celiac is not easy, I didn't want to give that impression, but at least we could manage it, just like I'm managing my celiac.

I'm wondering since she has multiple food allergies that she may have leaky gut and I need help with this.  I looked into the SCD diet but I'm afraid it will not work for her.  I need help with either supplements or food.  I'm very leary of giving her dairy right now.   The only dairy she's getting once in a blue moon is ghee.

Please give me some suggestions for leaky gut, I'm desperate and I want my child to grow!  At her allergy appt 2 weeks ago, the doctor mentioned the possibility of eosinophilic gastroenteritis or eosinophilic esophagitis, which I'm both familiar with.   She has to have an endoscopy for this, haven't scheduled yet but mulling things over and needing advice desperately.

Thanks and sorry this is so long!
T

ETA:  I forgot to mention she takes probitiocs once a day for a year now.  

[Pat Robinson]

I did not receive a notice of this post, I'm sorry it has been overlooked!

Will come back to reply, shortly.


Pat

[Precious]

I was thinking of reposting it in another thread, I saw one where people were posting their questions about their children. :)

Pat Robinson said:

I did not receive a notice of this post, I'm sorry it has been overlooked!

Will come back to reply, shortly.


Pat

[Pat Robinson]

Wow! You have been through a lot. It sounds scary and with losing more foods, it is much more complicated!

Here are my 14 steps for strengthening the immune system and healing leaky gut. I'll make some suggestions based upon your issues. But, it is a start. The most cost effective alternatives are whole food nutrients.

Nutrient dense foods:

homemade bone broth every. single. day. 1cup (MANY nutrients needed for detox, plus minerals) Find a lamb source; it is most tolerated.

homemade milk kefir every. single. day. 1 tablespoon (gradually work up) (B vits, enzymes, most probiotics in proper ph) I would do this unless IgE allergic. Start with 1/8 teaspoon.

green smoothie every. single. day. day 1 cups (any juice plus any dark leafy greens, rotate produce)

lamb or bison liver one ounce per week. (B-vits essential for detox) Puree and freeze and add to smoothies or other foods.

lentils or beans, 1 cup per day. (folate, molybdenum) These are critical for detoxification. Soak the beans overnight with a splash of ACV, pour off the soak water and cook. Make into dips or add to other foods or however she'll enjoy them.

What is the reaction to coconut? What about palm oil? You need fats in her diet, especially Omega 3 and saturated fats and medium chain fatty acids.

fermented CLO, every. single day. (most expensive item) (vit A, D, K, EFAs) This has the essential preformed vit A. Nordic Naturals peach flavored is another option, but not as many vitamins as the fermented, per my understanding.

Bubbies sauerkraut or sauerkraut juice 1 teaspoon every. single. day. (or other raw, fermented food) (probiotics) Before meals is ideal. Or the same amount of raw ACV. We like Braggs.

What is the reaction to nuts? Is it IgE? You need a selenium source for the thyroid and detoxification.

Epsom salts a pinch in water, all day long. (magnesium sulfate)
Celtic Sea Salt a pinch in every glass of water, broth. (microminerals)
Lemon juice, fresh squeezed, a bit in every glass of water or smoothie. (alkalizing to body ph, paradoxically)

Raw local honey, 1 Tbls at bedtime. (helps bifidum bacteria to grow in the gut)
Egg yolk, 1 per day. (nutrients help to detox)
Vit C, 1000mg, two times a day. (helps to detox)

Personally, I'd avoid ALL dairy, unless it is raw A2 dairy source and cultured. Goat's milk is A2, breastmilk is A2. Most cow's milk is A1 and poorly tolerated. I would NOT drink any pasteurized, homogenized, hormone treated milk!!

All soy, unless organic is GMO-soy. I would not use it AT ALL as it changes the microbials in the gut.

WHOLE FOOD probiotics are more effective at surviving stomach acid to the gut. I hope you are not giving her antacids?!


Epsom salt baths, 2 cups in a tub of water daily for 30 minutes.

Total cost about $4 per day.


That will get you started. Let me know what questions you have.

Pat

[Precious]

Thanks for your reply. Since she's allergic to fish I bought her organic flax seed oil(Spectrum). I just started that yesteday, I put 1/2 tsp. Is that enough? I added it to prunes. She is picky and I have to hide it if I want her to take it.

I don't really want to give her any dairy right now, the naturopath we went to said the same thing. We also don't do soy, she's negative on the tests but we haven't trialed it and I think we'll wait.

When she eats coconut she gets very gassy and complains of a stomachache. I do use Spectrum shortening but still need to ask her if she's ok with it. It's kind of hard because she's not quiet 3 yet.

Have you heard of L-glutamine? I was thinking of getting that.

As far as the green smoothie, she wouldn't drink it. What did you put? She is not a veggie person. Broccoli is her fave but once again I rotate it.

As far as other foods, I follow a rotation diet for her so every food is once every 4 days. I tried to do this last yr but slacked too much, I'm trying to be more vigilant this time. So I rotate oils, veggies, fruits, meats, grains, everything. I also read about the Specific Carbohydrate Diet online, I don't have the book and that seems promising too and thought about incorporating some stuff there.

I took lentils off for a few months because she was so gassy and complaining of a stomachache from them. I'm gonna try it again. Is any brand of ACV ok? I just have a generic Kroger brand. I need to check if it's gluten-free.

I need help w. the bubbies/sauerkraut. I don't know how to make them and I'm not sure she will even eat them. She takes a very expensive probiotic first thing in the morning. It's from Custom Probiotics, it's the purest probiotic you can find in the market.

I'm not giving her antacids.

Thanks....input please.


Pat Robinson said:

Wow! You have been through a lot. It sounds scary and with losing more foods, it is much more complicated!

Here are my 14 steps for strengthening the immune system and healing leaky gut. I'll make some suggestions based upon your issues. But, it is a start. The most cost effective alternatives are whole food nutrients.

Nutrient dense foods:

homemade bone broth every. single. day. 1cup (MANY nutrients needed for detox, plus minerals) Find a lamb source; it is most tolerated.

homemade milk kefir every. single. day. 1 tablespoon (gradually work up) (B vits, enzymes, most probiotics in proper ph) I would do this unless IgE allergic. Start with 1/8 teaspoon.

green smoothie every. single. day. day 1 cups (any juice plus any dark leafy greens, rotate produce)

lamb or bison liver one ounce per week. (B-vits essential for detox) Puree and freeze and add to smoothies or other foods.

lentils or beans, 1 cup per day. (folate, molybdenum) These are critical for detoxification. Soak the beans overnight with a splash of ACV, pour off the soak water and cook. Make into dips or add to other foods or however she'll enjoy them.

What is the reaction to coconut? What about palm oil? You need fats in her diet, especially Omega 3 and saturated fats and medium chain fatty acids.

fermented CLO, every. single day. (most expensive item) (vit A, D, K, EFAs) This has the essential preformed vit A. Nordic Naturals peach flavored is another option, but not as many vitamins as the fermented, per my understanding.

Bubbies sauerkraut or sauerkraut juice 1 teaspoon every. single. day. (or other raw, fermented food) (probiotics) Before meals is ideal. Or the same amount of raw ACV. We like Braggs.

What is the reaction to nuts? Is it IgE? You need a selenium source for the thyroid and detoxification.

Epsom salts a pinch in water, all day long. (magnesium sulfate)
Celtic Sea Salt a pinch in every glass of water, broth. (microminerals)
Lemon juice, fresh squeezed, a bit in every glass of water or smoothie. (alkalizing to body ph, paradoxically)

Raw local honey, 1 Tbls at bedtime. (helps bifidum bacteria to grow in the gut)
Egg yolk, 1 per day. (nutrients help to detox)
Vit C, 1000mg, two times a day. (helps to detox)

Personally, I'd avoid ALL dairy, unless it is raw A2 dairy source and cultured. Goat's milk is A2, breastmilk is A2. Most cow's milk is A1 and poorly tolerated. I would NOT drink any pasteurized, homogenized, hormone treated milk!!

All soy, unless organic is GMO-soy. I would not use it AT ALL as it changes the microbials in the gut.

WHOLE FOOD probiotics are more effective at surviving stomach acid to the gut. I hope you are not giving her antacids?!


Epsom salt baths, 2 cups in a tub of water daily for 30 minutes.

Total cost about $4 per day.


That will get you started. Let me know what questions you have.

Pat

[Jennifer Redwine]

I did a search on esophagitis and saw this. Have you had any more information?

I have eosinophilic esophagitis and have had to go to a proton pump inhibitor due to multiple ER visits. I also have mood issues and am er, organizationally challenged, and my husband is not at all supportive of my efforts to change my diet or eat foods from the list. I was just wondering if you have tried to follow it or SCD and had any good results?

[Pat Robinson]

Jennifer, just start with one thing: green smoothies or Epsom salt baths. Do that regularly and then add another ONE thing, such as Bubbies sauerkraut juice with meals.


Pat 

[Precious]

Hi, this thread is old and just saw the replies. My daughter is 4.5 now and is doing much better. We switched to a strict paleo diet and also went on a strict supplement regimen(per our MD) and she has improved. One of the things that has helped her is digestive enzymes. We use Houston Enzymes. I started her slow on that. We did the sauerkraut too and other fermented veggies and lots of other things have helped. She gained weight and doing better overall. 

Anyway she uses digestive enzymes, probiotics, L-glutamine, melatonin and L-gluthatione transdermal lotion. Oh and Lauricidin.  I may have missed a few, if I remember it, I'll post.

She has never been formally diagnosed with EE. We have put off the endoscopy til she's maybe older.   Good luck!

[Jennifer Redwine]

Thanks so much! I was wondering if maybe you were still around. How do the enzymes help, and what MD were you able to find to prescribe them and the diet?